Sorry not been much help really have I? The weight thing is awful too and so is the hair thinning. the main thing that i have found to help me get through this is this site . There is an increase in risk of developing blood clots or pulmonary embolism associated with Tamoxifen use particularly in women over age 50. Gains… What gains? Some people will have more side effects than others, and some don’t have any side effects at all. If such side effects of Nolvadex occur, use will normally continue as treating breast cancer is without question the primary concern, and it is highly effective. You also need to be aware that there are medications you cannot take with tamoxifen. Like most breast cancer treatments, tamoxifen can cause side effects, including hot flashes and night sweats. Irregular or loss of menstrual periods. Thanks so much for this. It's a safe forum where you can create or participate in support groups and discussions about health topics that interest you. Common side effects include depression, nausea, vomiting, and headache. ), it took about 4/5 months for me to get used to the side effects , so don't worry it does get much easier with time and your body does get used to the changes ( also it's a bit of a relief not to have those " monthly visits "! Bleeding Not Related To Menstrual Period 2. As for Tamoxifen, I took it from 2000-2005. I gave them the list of side effects with the ones I had marked, and it was thrown in the waste basket in front of me. However, for some people they may cause distress and disrupt everyday life. American Society of Clinical Oncology, Journal of Clinical Oncology Ahttp://jco.ascopubs.org/content/28/8/1294.abstract and Business Week http://www.businessweek.com/lifestyle/content/healthday/635927.html. Sure, it’s a popular PCT and users claim it’s a necessity after a steroid cycle, but what you may not realize is Nolvadex can cause a whole host of other issues, making it just as problematic as the steroid cycle itself. I was on tamoxifen for 5 years after radiation and have been off of it for a year now. ( but that was probably caused by siting around after my surgeries ! Isle of Man company number 4694F. It is commonly used to treat breast cancer.It is also used to decrease the chance of breast cancer coming back in women who have received treatment for the disease. SAN ANTONIO -- The antidepressant venlafaxine (Effexor), often given to breast cancer patients to treat the hot flashes associated with tamoxifen therapy, … However, in some women who take it, tamoxifen causes problems with thinking. And if they don't subside, and it is intolerable, talk to your doctor about other options besides Tamoxifen. De Censi said the rate of side effects -- such as hot flashes, vaginal dryness, pain during intercourse and muscle pain -- was similar to the rate that occurred with a placebo pill. Chemo is a battle, but you will get through it if they offer FEC chemo, then ask them to give you your anti-sickness and steroids via IV rather than in tablet form. Tamoxifen (Nolvadex) prescribed for the prevention and treatment of breast cancer in men and women, and occasionally, to stimulate ovulation in women. Nolvadex (tamoxifen) PCT Proper Protocol. i am so grateful to have seen all your posts and comments. Everyone reacts differently to drugs. As an alternative to Clomid, which has been reported to have led to unwanted side effects such as visual disturbances in some users, Nolvadex can be employed. Thanks a lot. The ideal method to avoid making terrible choices is to collect information. Some people will have more side effects than others, and some don’t have any side effects at all. Leg swelling. I've been reading about how Tamoxifen can cause chemo brain on this web site and have found some research sites that talk about this. I'm determined to stay on Tamoxifen but I will and do ask for support around it if I find anything difficult. Thomas, Liji. Glad it has helped , think that when so many people are in the same situation it is nice just to be able to talk and some how that seems to make things a little better !!!! Erectile dysfunction. This medicine may lower the number of some types of blood cells in your body. Learn about how the side effects of these hormone therapies compare. Tamoxifen (Nolvadex) prescribed for the prevention and treatment of breast cancer in men and women, and occasionally, to stimulate ovulation in women. It's really reassuring to hear it. Side effects of tamoxifen versus side effects of aromatase inhibitors. Drug-Induced Hot Flash 4. Although both aromatase inhibitors and tamoxifen can cause menopausal symptoms such as hot flashes, many of their side effects differ. Talk to your doctor about this risk. Tamoxifen didn’t reduce the risk that women diagnosed with hormone-receptor-negative breast cancer would die from breast cancer. I’m not sleeping very well due to hot flushes which triggers anxiety (all 3 have a knock on effect with each other....catch 22!!). Been on Tamoxifen for 12 days now. Having few or no side effects doesn't mean the drug is not effective. Find everything you need to know about Tamoxifen (Nolvadex), including what it is used for, warnings, reviews, side effects, and interactions. The most significant is the hot flashes or "night sweats" she experiences, which cause her to have only 2-3 hours of sleep each night. Please support our emergency appeal. I have been taking tamoxifen for a month now and have noticed that my fingers and toes have swollen alot, has anyone had experience of this? my results from my masec were that the egdes of my breast tissue werent clear and now they dont no if i might have floating cells round my body is there anybody that understands my situation as im confussed and worried as i was prepared my results were going to be clear. Common side effects include depression, nausea, vomiting, and headache. WARNING: Uterine cancer, stroke, and blood clots in the lung have been reported when using tamoxifen for risk-reduction of breast cancer. Fluid Retention In The Legs, Feet, Arms Or Hands 5. That I would be better off waiting to for any side effects before starting treatment. Find out how likely side effects of tamoxifen are and side effects to report to your doctor, including common tamoxifen side effects, advice on tamoxifen and weight gain and blood clots symptoms I took the Tamoxifen for three weeks and all the side effects of constipation, mild vaginal itch, tired, nausea and weight gain immediately..uuuhg! Thanks. hope all continues in the right direction for you . Dealing with menopausal symptoms related to hormone therapy can be hard. They mean a lot. I am not taking any … Talk with your health care provider about ways to ease these and other side effects. Yet there is a paucity of published data on tamoxifen and fibroids. I hope this may help you, I know it is a worrying time I have asked to see the clinical psychologist because after treatment I too thought I would be feeling a lot more positive than I actually am. For many people, side effects improve within the first few months of starting the treatment. Tamoxifen works by blocking estrogen receptors. Sounds like you have had the same treatment as I have. just gonna give it time to get used to it and take it as it comes and hope it settles. Irregular or loss of menstrual periods. In men, possible side effects of tamoxifen include [ 87-89 ]: Blood clots in the large veins (deep vein thrombosis) Blood clots in the lungs (pulmonary emboli) Also, your health care professional may be able to tell you about ways to prevent or reduce some of these side effects. Hi Sara,  have not had any of the side effects you have had so far. Breast cancer forum requires membership for participation - click to join. What has knocked me for six is not the usual side effects that I'm having quite badly but that I'm also having problems thinking and working things out and speaking and remembering things. Nolvadex Side Effects Tamoxifen Citrate is a Selective Estrogen Receptor Modulator (SERM) best known by its most popular trade name Nolvadex. I take ages to think, remember and to write so it's great to hear that over time you find ways round it even though it obviously doesn't get better until you go off it. Here's some information that reassued me I wasn't going mad, hope they help you too. Tamoxifen's selective estrogen activation effects can cause some serious side effects, including blood clots, stroke, and endometrial cancer. The length of treatment along with side effects can make it tough to complete treatment. Everyone reacts differently to drugs. Hi,  I have been on Tamoxifen for 41/2 years now and I will soon be coming to the end of my treatment. Dosage, and drug interactions, pregnancy, and breastfeeding information are provided. See below for a comprehensive list of adverse effects. I've been reading about how Tamoxifen can cause chemo brain on this web site and have found some research sites that talk about this. My oncologist is recommending tamoxifen but I've been reading about the side effects, the depression, ect, and I am really wondering if it is worth it. I will start a treatment with 20mg/day tamoxifen (Nolvadex) (10morning and 10 night) to treat gynecomastia. Nolvadex (tamoxifen) PCT Proper Protocol. Folks often say that information is power, and though it's on the verge of turning into a cliché, it is still true. ), i had very bad hot flushes mainly at night , i started taking my tablets at night instead of during the day as i found hot flushes were easier to cope with during the day than at night ( i can be very grumpy if i don't get my sleep..ha ha ha )  i also put on about 1 1/2 stone in weight !!!! SOmetimes they last a short while. Duloxetinepka. I've been taking tamoxifen for 1 year and half now and these are the side effects that I have experienced so far! You also need to be aware that there are medications you cannot take with tamoxifen. Over time symptoms seem to be getting better. [/color:r661bn6d] It took me a long while to get used to the side effects (much more than one month). "Low-dose tamoxifen is as effective as the standard dose," said study author Dr. … VAT no: 668265007, Planned maintenance - Tuesday 10th November, 7am-1pm, Fixes and issues - an update for members, October 2020. I usually weight 128 and I'm 40, any pound feels like a ton. The most common side effects associated with tamoxifen treatment are menopausal type symptoms, such as hot flushes and sweats, and vaginal itching, dryness or discharge. My treatment finised in the middle of september. I've lost weight rather than putting it on because I feel nauseous quite a lot of the time. The side effects are almost all gone now. There is a very useful thread on the subject of Tamoxifen on Breast Cancer Care site. While the side effects of tamoxifen can be bothersome, they’re overshadowed by the reality that hormone-receptor-positive breast cancer can come back. Talk to your doctor about this risk. Hi, I've been on Tamoxifen now for about a year and the main side effects I have are that it triggered menopause and my skin, which has been a bit dodgy all my life, suddenly got much worse. Jo Jones. I had radio and no chemo but I've been on Tamoxifen for a few months. Also I have the hot flushes night sweats, and my monthly visit has stopped, only been taking them since feb, hope the brain thing gets better as I'm sitting some exams soon and finding it hard to revise. ; to treat [secondary breast cancer] to reduce risk of breast cancer developing in women at high risk because of their family history. I don't get swollen fingers and toes but my feet suddenly feel very hot and painful as if I'm standing on burning coals so that it hurts to stand. (2018, August 23). Tamoxifen may increase the risk that you will develop other cancers, including liver cancer. I too wondered about the impact of tamoxifen on fibroids given its partial estrogen-like effects on some body tissues. Like most breast cancer treatments, tamoxifen can cause side effects… The length of treatment along with side effects can make it tough to complete treatment. As an alternative to Clomid, which has been reported to have led to unwanted side effects such as visual disturbances in some users, Nolvadex can be employed. Thank you so much for your words. Side effects of tamoxifen may include: Menopause-like symptoms, including hot flashes, night sweats and vaginal dryness. I hope other people get in touch too - sharing and togetherness really do help! ( although my spell check doesn't work on this site !!! Don't give it up it is one of the most effective treatments for breast cancer patients. I was lucky enough to attend one of the meetings of patients and researchers. Feeling Weak If experienced, these tend to have a Less Severe expression 1. bloating or swelling of the face, arms, hands, lower legs, or feet Let’s review the 5 most troubling Nolvadex side effects. I've been reading about how Tamoxifen can cause chemo brain on this web site and have found some research sites that talk about this. I stopped taking the Tamoxifen because of the side effects and I was just honestlt MAD...madder than mad, don't know how to explain it. What has knocked me for six is not the usual side effects that I'm having quite badly but that I'm also having problems thinking and working things out and speaking and remembering things. I have just finished four rounds of chemo for ER+ Pr+ breast cancer. These very positive results show that the benefits of tamoxifen are long-lasting. On top of that, the lower dose -- just 5 milligrams daily -- came with fewer troubling side effects. Side effects of tamoxifen may include: Menopause-like symptoms, including hot flashes, night sweats and vaginal dryness. During the time I was taking it I had fatigue, hair thinning, a slower metabolism and thickened endometrium (known as tamoxifen uterus). Having few or no side effects doesn't mean the drug is not effective. I've been on tamoxifen for about 4 month now and have a number of side effects. I hope I'm in the right place on the web site and that someone can help. I've only been on the Tamoxifen for a short while but I've noticed changes and it's slowly and steadily getting worse. Today is the first day in months that my head has been clear and hence googled side effects of Tamofin and found you. I too feel like giving up but I'm too scared to. A woman who is choosing between Arimidex and tamoxifen should discuss the benefits and risks of each with her physician, including a review of her bone density history. If this does not work surgery would be the only option. Talk to your doctor about this risk. Nausea. The side effects are almost all gone now. I’m not sleeping very well due to hot flushes which triggers anxiety (all 3 have a knock on effect with each other....catch 22!!). Like any drug, tamoxifen can cause side effects. I seem to be loosing weight on the tamoxifen as well so dont know what is going on. I have been taking tamoxifen since the beginning of January, no side effects for first 3 weeks, thought I’d got away with it, but sadly not. I have found mine to be very helpful. The nurse said that this was normal! Keep taking the tablets lol! What has knocked me for six is not the usual side effects that I'm having quite badly but that I'm also having problems thinking and working things out and speaking and remembering things. I am being treated but if anyone else has any experience of this I'd love to know that I'm not the only one. Is there anyone else on this fab chat forum that can advise us both. © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Weight gain (more common) or fluid retention (edema). I usually weight 128 and I'm 40, any pound feels like a ton. If experienced, these tend to have a Severe expression 1. I have seen my surgeon today and she confirmed that the swelling and weight issues are due to the tamoxifen. ... Additionally, the WebMD Drugs & Medication Guide has product information and over 300 user reviews for tamoxifen that might discuss side effects and remedies. Weight gain (more common) or fluid retention . I've lost weight rather than putting it on because I feel nauseous quite a lot of the time. Tamoxifen is a hormonal therapy drug used: to reduce the risk of breast cancer coming back and to prevent a new cancer developing in the other breast – you take it for a number of years. I don't get swollen fingers and toes but my feet suddenly feel very hot and painful as if I'm standing on burning coals so that it hurts to stand. I'm so sorry to hear about everything you have been going through as well as the cancer. During the time I was taking it I had fatigue, hair thinning, a slower metabolism and thickened endometrium (known as tamoxifen uterus). Side effects from tamoxifen are not usually severe. nicki t, I had a lumpectomy on 9th September my tumour had clear margins but there was a small amount of cancer in the one  lymph node taken.Because I am post menapausal I have been prescribed Femara rather than tamoxifen.If you have a breast care nurse why don't you ring her and tell her your confused and can she explain what your results mean? Meetings of patients and researchers have more side effects you have been some weight,. Am not taking any … side effects, including liver cancer a number of some types of blood in... 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